Monday, March 26, 2012

Olivia & NF1 Update


Olivia is my hero.

Whenever a new contraption is brought out she is willing to do what she is asked, and usually she does it with a smile.

In January, Olivia saw her eye specialist and aced her eye exam (20/20 - 20/25). Both of her eyes are healthy. We love good news!

Olivia continues to see her speech therapist and we are trying to figure out why Olivia is hard to understand. She struggles with her /l/ sound, but that's pretty common, her pronunciation is improving, and it's not a big concern right now. She pronounces all the other sounds great, especially when we're working one-on-one with her.

The speech therapist decided to do some other tests and try some other thigns based on the report from Olivia's visit to the ENT last year (a report that I don't even come close to understanding because it's all iin doctor-speak). The contraption pictured above measures how much air is escaping out her nose when she talks, but the results were within the normal ranges. Right now the speech therapist is focusing on Olivia's pitch - helping her understand when she is talking "bumpy" or "smooth" - and we'll see if that helps.

Nothing very exciting and we like it that way!

Olivia will have another brain MRI in April so I'll do another update then.

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