Saturday, April 30, 2011

Charming So-So

 Sophie loves going up the stairs - whenever she went missing she was most likely found on her way up the stairs (or eating legoes in the kids bedroom).  Kurt discovered we could use a couple couch cushions to block the stairs.  Sophie is not pleased, but we are!
 Helping Dad read. 
 Sophie loves the dog bed - laying on it, burrowing her face in it, putting her arms through the holes, helping Dade pull out the stuffing and tasting it - its pretty gross!
 Sophie is discovering FLAVOR - she loves sharing craisans with Nyah.
 What? Where are the pictures of my other kids? What kids?

All our kids have teddy bears, but Olivia never wants to play with hers.  Yesterday she was crying because I made her give back Jolie's teddy. Olivia complained her bear has his eyes closed.  Bit of a haircut was needed. 

 Of course, Olivia still doesn't want to play with her own bear, which means she plays with Jolie's bear because she likes it better.  Not much I can do about that :)

Thursday, April 28, 2011

Who are we?

I was looking through some old pictures - you know, the kind on paper in a photo album - and I noticed how similar my kids' baby pictures look.  Can you guess who is who? I think its kind of obvious and you might too!

1.
 2.
 3.
 4.
 5.

Saturday, April 23, 2011

Olivia NF1 Update


A couple days ago we met with Olivia's genetic specialist, Dr. David Viskochil.  He is a wonderful doctor! He pulled up Olivia's March 2011 MR images so we could look at the new glioma growing near the cerebral aqueduct, and then we compared these images with past MRI's. 

The following brain MR image is NOT Olivia's. 
I found it online to help explain where her new glioma is located (I lost the website where I found it or there would be a link). 

The cerebral aqueduct is the dark triangle-ish shape in the lower half of the picture:


Above the cerebral aqueduct there is a lighter gray area and the bottom part looks like a, well, a bottom :) It looks like a bum, okay?  I can't think of any other way of describing it - Sorry!  Anywho, the new glioma is on the left bum cheek.  The MRI report says the glioma is 9.5 mm wide and it is causing a mild displacement of the aqueduct.  Basically, the left bum cheek is bigger/bulging more than the right. 

There is still good flow through the cerebral aqueduct.  There is no evidence of obstruction, though Olivia does have a greater risk of future aqueductal compression and hydrocephalus.  In 2 months Olivia will do another MRI to see if the glioma has grown. 

The part of the appointment that I found to be the most helpful is when the doctor explained the nature of NF1 gliomas.  He said they usually have a burst of growth and then stop growing.  Sometimes they may have future bursts of growth, but usually they are done growing after their initial burst of growth. Hopefully, this will be the case with Olivia's new glioma. 

The only other concern the doctor had after examining Olivia is about her speech.  He thought her voice sounded gravelly and monotone and wants her to get a speech assessment.  She will possibly need speech therapy.  This wasn't a surprise as we've noticed she is sometimes difficult to understand and she has to work harder to pronounce words correctly, well, as correct as our Utahn accents can be :) 

Wednesday, April 20, 2011

Spring Pictures

We've been enjoying the (sometimes) beautiful weather of Spring



We went to Logan for my nephew's birthday party- everyone had a great time!







Sunday, April 10, 2011

Recent Pictures

I went to take a picture today and discovered Austin had filled my camera with Lego videos :) Here are some other pictures and videos from this last week.

 






Monday, April 4, 2011

Olivia NF1 Update

Olivia had an MRI on March 21st to check on the optic gliomas on the optic nerves of both eyes. We FINALLY heard back from the eye doctor today.

So, the latest and greatest news first:  the gliomas and visual pathways do not show any changes - "They look great!"

The not-so-great news:  incidentally, a new glioma was found on her cerebral agueduct. Right now, there is no evidence of a blockage or other problems (great news), but it can potentially cause a blockage and hydrocephalus.  An excellent book about NF1 is now available at Google Books - pg 112 for an explanation of Hydrocephalus as a result of NF1

Because it was the eye doctor who ordered the MRI and called today (and not the genetic specialist) I didn't get information about follow up or what kind of treatment or anything like that.  I would say its another watch-and-wait type thing as long as it isn't causing problems. 

We are supposed to see the genetic specialist the end of May, but that appointment will probably be moved up so we can get in sooner.

More of Olivia's NF1 History -
December 14, 2010
July 13, 2010
(I did start working on the WHOLE STORY, but haven't finished it yet).

So please keep Olivia in your prayers!

Sunday, April 3, 2011

Sunshine! (For a day or two anyways!)

We had a few beautiful sunshiney days . . . and then we woke up to INCHES of snow this morning.  We enjoyed it while we could :)







After dealing with many messes of enormous magnitude all week . . . 
(sidenote concerning this particular pictured mess- I spent 4 hours scrubbing the spots on the carpet someone dripped all the way to the bathroom- fun, fun, fun day)
 . . . It was so wonderful to get out of the house Friday night with my favorite guy and favorite baby.  We went to Kurt's mission reunion and I had a fabulous time speaking to other adults :)